Documentation

PRI User’s Manual – This document provides step-by-step instructions on how to use the Phenotype Recording Instrument (PRI), as well as our data representation and query tools.

Limited User’s Manual for Evaluation of the PRI – Investigators who are interested in using our tools but have not joined the RUBHPSR can test some of our tools by using the procedures delineated in this document.

Bleeding History Questionnaire – This document is the questionnaire used by the RU PRI in Word document form.

Phenotyping System Development Guide – This document provides an overview of the rationale behind the Phenotyping System, as well as a guide to the methods used to build the system.

Bleeding History Ontology – The Bleeding History Ontology (BHO) is a data definition tool underlying many BHPS applications.

Standard Operating Procedures for Investigators Using the RUBHPSR – This document details the standard operating procedures for joining the RUBHPSR.

RUBHPSR Level 1 Agreement Letter – Investigators who wish to use the PRI to collect their data have the option to make their de-identified data available for other RUBHPSR investigators to query. In return, investigators will be offered access to the full (“aggregate”) RUBHPSR database. Such investigators are given “Level 1” access and are asked to submit this letter on an annual basis.

RUBHPSR Level 2 Agreement Letter – Alternatively, investigators who use the BHPS to collect their data may not wish to share their data with the RUBHPSR community. In this case, investigators are given “Level 2” access. Level 2 investigators do not have access to the aggregate database. Investigators with Level 2 access are asked to submit this letter on an annual basis.

Aggregate PRI Reports coding key - This document provides the key to numeric coding assignments for the Aggregate PRI Reports utility. For further details, please see the PRI User's Manual.